Studio is Ready! See nat't TV show in production; #AskTVDr ?s #ALS @SecondOpinionTV http://bit.ly/OC6Kxm @healthnewsnow @alsontarioSecond Opinion

Panel briefing for ALS Second Opinion episode. Join the conversation. #asktvdr http://pic.twitter.com/ogitPrcCElissa Marra Orlando

Getting ready to watch the ALS episode of #Second Opinion's upcoming season being taped. So interested in this topic! Might even #asktvdrIrene Fink

WATCH LIVE awaiting panelists http://bit.ly/J3aYLn Do you know someone w/ ALS? #AskTVDr @SecondOpinionTV Pls RT @NPRHealthSecond Opinion

Lou Gehrig’s Disease affects 5 out of every 100,000 people. Watch LIVE NOW @SecondOpinionTV #AskTVDr http://ht.ly/bz6uoKQED

RT @secondopiniontv: WATCH LIVE awaiting panelists http://bit.ly/J3aYLn Do you know someone w/ ALS? #AskTVDr @SecondOpinionTV Pls RT @NPRHealthZebrafinch

RT @KQED: Lou Gehrig’s Disease affects 5 out of every 100,000 people. Watch LIVE NOW @SecondOpinionTV #AskTVDr http://ht.ly/bz6uoConciergedoc

ALS affects brain nerve cells that control muscle movement #AskTVDr @SecondOpinionTV Getting Ready WATCH http://bit.ly/J3aYLnSecond Opinion

Now watching the live taping/Tweet event for @SecondOpinionTV http://bit.ly/J3aYLn #AskTVDrMike McDougall

RT @RabbiJason: 2pm today: Webcast of Taubman Inst Dir Dr. Eva Feldman on PBS medical show @SecondOpinionTV #AskTVDr http://ow.ly/bA6OcThe ALS Association

Welcome Deb Guntrum, NP @URMCDiscoveries Now answer ?s at #AskTVDr @SecondOpinionTV Watch: http://bit.ly/J3aYLn http://ow.ly/i/HghLSecond Opinion

Me too! RT @mikemcdoug: Now watching the live taping/Tweet event for @secondopiniontv http://bit.ly/J3aYLn #AskTVDrMark Frisk

Doctors in briefing--going on set soon #AskTVDr ?s re ALS or Amyotrophic Lateral Sclerosis or Lou Gehrig’s Dis. http://bit.ly/J3aYLnSecond Opinion

Now happening: special live taping/Tweet event for @SecondOpinionTV. Topic is ALS. Watch here: http://bit.ly/J3aYLn #AskTVDrMcDougall TC

Joy just arrived-shares her story of ALS! WATCH LIVE http://bit.ly/J3aYLn Tweet ?s 4 Joy or our NP #AskTVDr @SecondOpinionTVSecond Opinion

Joy is ready 2 answer ?s at #AskTVDr @secondopiniontv http://pic.twitter.com/LZbYsLhxJill Rehak Kemp

Almost ready to start -- producer and host @secondopiniontv #asktvdr http://pic.twitter.com/sxwlwrcTJill Rehak Kemp

@secondopiniontv hanging out in the Twitter room #AskTVDr http://pic.twitter.com/a5U3v7fVJoy Parker

Dr. Tim Quill ready to go live on @SecondOpinionTV #AskTVDr ?s http://bit.ly/J3aYLn @ALSTDI @WTVI @MDNewsNetwork http://ow.ly/i/HguYSecond Opinion

#asktvdr Please speak to ALS prevalence (relatively low) to incidence (relatively high)... a deadly combination. Incidence similar to MS.ALS Advocacy Topics

@alsadvocacy People w/ MS live longer. No known cause for #ALS. Tweet ?s to #AskTVDr http://bit.ly/OC6Kxm @SecondOpinionTVSecond Opinion

Members of @alsagoldenwest, alsa san diego, and alsa oc @SecondOpinionTV #AskTVDr about #ALS http://fb.me/1y7hBLNXvALSA GoldenWest

Twitter room-Second Opinion. #asktvdr http://pic.twitter.com/xuP6jHZSElissa Marra Orlando

#AskTVDr @secondopiniontv Exec Producer Elissa Orlando, watch live & tweet your ?s http://pic.twitter.com/kl3rbqgWJeanne Fisher

We are interested in hearing more about Dr. Feldman's research and her thoughts on a cure #AskTVDrJasmine Bulin

@jsbulin Info on Dr. Feldman Research at http://ow.ly/bAn2D #AskTVDr @SecondOpinionTV http://bit.ly/OC6KxmSecond Opinion

@jsbulin Dr. Feldman wrote 220 articles 2 books PI 4 NIH grants, 5 clinical trials on understand, treat neuro disorder/ ALS #AskTVDrSecond Opinion

Prep on set for @SecondOpinionTV Want to Win T-Shirt? Send comment or RT #AskTVDr http://bit.ly/OC6Kxm Winner chosen at end event!Second Opinion

#AskTVDr question from Dean Z: Is there any new research on the onset speed of ALS? Is there a slower onset in the upper or lower body?KOCE PBS SoCaL

@pbssocal Slower ALS onset when starting in limbs; quicker when starting in bulbar or mouth #AskTVDr http://bit.ly/OC6KxmSecond Opinion

Joy shares how hard it is to see others further along with #ALS @SecondOpinionTV #AskTVDr http://bit.ly/J3aYLn @alsassociation @TEAMCUREALSSecond Opinion

WATCH LIVE NOW--Mary Beth Geise on @SecondOpinionTV #AskTVDr ?s http://bit.ly/J3aYLn @ALSTDI @WTVI @MDNewsNetworkSecond Opinion

Here we go! #AskTVDrJoy Parker

#AskTVDr Gary Temoyan is sharing his personal story right now. Your ALS stories help inspire others to action http://secondopinion-tv.org/liveALS Philadelphia

RT @secondopiniontv: ALS affects brain nerve cells that control muscle movement #AskTVDr @SecondOpinionTV Getting Ready WATCH http://bit.ly/J3aYLnThe ALS Association

HEAR STORY LIVE NOW--Gary Temoyan on @SecondOpinionTV #AskTVDr http://bit.ly/J3aYLn @alsassociation @MDNewsNetwork @WQLN @TEAMCUREALSSecond Opinion

Gary’s search 4 answers w/ primary care dr who sent him to hematologist #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Wow this guest noticed symptoms in 2006. Mine started showing in 2007 #AskTVDrJoy Parker

RT @KQED: Lou Gehrig’s Disease affects 5 out of every 100,000 people. Watch @SecondOpinionTV #AskTVDr http://bit.ly/LHkyajlacy drissi

Importance of prompt dx of ALS... the window to qualify for a c.t. is often wasted by the time patient is dx'd. #asktvdrALS Advocacy Topics

If you know nothing about ALS, we are learning about the onset symptoms now during #asktvdr @SecondOpinionTV live http://bit.ly/J3aYLnJasmine Bulin

Gary first noticed numbness in thumb, which he ignored; got sent 2 hand dr #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Mine started in my feet/legs. Thought I had restless legs. Had twitches all over. #asktvdrJoy Parker

RT @secondopiniontv: WATCH LIVE NOW--Mary Beth Geise on @SecondOpinionTV #AskTVDr ?s http://bit.ly/J3aYLn @ALSTDI @WTVI @MDNewsNetworkALS TDI

Tough to diagnosis ALS as symptoms mimic other medical conditions #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Diagnosis difficult -- a 2nd opinion is critical #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

@simplejoysphoto - Does his story sound similar to yours? #asktvdrIrene Fink

@ifink1976 Joy says YES It's a journey to get to diagnosis. Took 3 or 4 years since she is not a typical ALS candidate (young mom) #AskTVDrSecond Opinion

Joy remembers EMG test w/ needle -- NOT FUN! Diagnosis difficult #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

@simplejoysphoto Deb Guntrum NP says every case is different, although Joy & Gary share symptoms #AskTVDr @SecondOpinionTV ecSecond Opinion

RT @lacydrissi: RT @KQED: Lou Gehrig’s Disease affects 5 out of every 100,000 people. Watch @SecondOpinionTV #AskTVDr http://bit.ly/LHkyajPenny Mills

Watch live ALS show @secondopiniontv http://bit.ly/OC6Kxm Tweet questions #AskTVDr Taping now after a brief delay - good news for you!Lucie Raposo @ WSBE

It's the old prob of hoofbeats and ALS being the ultimate zebra in docs' minds... perhaps Dr Freud not wanting to make the dx? #asktvdrALS Advocacy Topics

I already can't believe what Gary has been through. He's mentioning denial. Is that typical? #asktvdrElissa Marra Orlando

@irone Of course, denial is typical. Joy said "please let it not be ALS" #AskTVDrSecond Opinion

My PT told me to go to neurologist #AskTVDrJoy Parker

Gary Temoyan worked dream job as highway policeman riding motorcycle, until he noticed some symptoms #AskTVDr @SecondOpinionTVSecond Opinion

Gary's Dr noticed one shoe more scuffed--he was dragging one leg #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

@secondopiniontv 24-month from onset typical to qualify for c.t. #asktvdr From onset to dx, that time is often spent.ALS Advocacy Topics

@alsadvocacy Joy says so true--my first neurologist didn't want to say its ALS #AskTVDrSecond Opinion

Dr. Feldman @UMHealthSystem No one single test to diagnose ALS #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Different types of ALS not one test #AskTVDrJoy Parker

Dr. says only 10% ALS is genetic. More common to not run in family. #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

@ alsagoldenwest #AskTVDr Gary Temoyan is sharing his personal story right now. Your ALS stories help inspire... http://fb.me/1L0JHywZgALSA GoldenWest

Learning a lot from the panel about ALS @SecondOpinionTV #AskTVDrSara Hunter

ALS is neurodegenerative disease which means progressive & continued loss of function @SecondOpinionTV #AskTVDr http://bit.ly/J3aYLnSecond Opinion

#AskTVDr Do we know how sporadic ALS develops if it's not genetic? How does one get it if it's not hereditary? #AskTVDrJeanne Fisher

@jefisher100 Dr Feldman says there may be environmental factors, example of cases in military personnel stationed together #AskTVDrSecond Opinion

ALS can be bulbar onset (from mouth) OR limb OR both #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Eva Feldman MD PhD on LIVE Event NOW @SecondOpinionTV #AskTVDr ?s http://bit.ly/J3aYLn @UMHealthSystem @HopkinsMedicine @MDNewsNetworkSecond Opinion

Another dx challenge-ALS in elderly. It does happen. Often mistaken for small strokes, etc. #asktvdr Miss it long enough & patient is gone.ALS Advocacy Topics

@alsadvocacy Yes, ALS can mimic stroke, many other conditions #AskTVDr @SecondOpinionTVSecond Opinion

@alsadvocacy Tks! Your comment going in nat'l production -- Docs to discuss soon. #AskTVDr @SecondOpinionTVSecond Opinion

Only 1 med approved by FDA to slow progression; VERY expensive #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Rilutek is awesome #AskTVDrJoy Parker

Against Dr advice, Gary continued 2 work 4 2 yrs--feels it helped mental, phys health #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

On the topic of environmental factors, does anyone on the panel think radiation exposure is a possibility? #asktvdrJasmine Bulin

@jsbulin Dr Feldman says it is not known if radiation exposure contributes to ALS #AskTVDrSecond Opinion

ALS Walk on Fathers Day at Frontier Field in Rochester. #AskTVDrJeanne Fisher

#AskTVDr @secondopiniontv Gary is involved ever year in the Greater Philadelphia Walk to Defeat ALS http://www.kintera.org/faf/home/default.asp?ievent=999057ALS Philadelphia

@alsphiladelphia Great to hear about Gary's involvement in advocacy. Joy does great education work in Roch. #AskTVDrSecond Opinion

@secondopiniontv It's great knowing people like Gary and Joy are working to fight ALS all over the country #AskTVDrALS Philadelphia

http://yfrog.com/nyjdvcxj Watching Second Opinion on ALS taping. #asktvdr #second opinion.Irene Fink

RT @secondopiniontv: ALS is neurodegenerative disease which means progressive & continued loss of function @secondopiniontv #AskTVDr...WXXI News

Normally #ALS patients die w/in 3-5 years. GLAD--Joy & Gary r different! #AskTVDr @NPRHealth WATCH LIVE NOW http://bit.ly/OC6KxmSecond Opinion

I always come back from ALS clinic and tell everyone that I still have AS! lol! #AskTVDrJoy Parker

Dr Papa says People with neurological issues like ALS have more serious prob w/ depression #AskTVDr @SecondOpinionTVSecond Opinion

Drugs are good for depression #AskTVDrJoy Parker

Very honest with kids about dying. #AskTVDr #ALSJoy Parker

Joy is open w/ daughter Nicole, age 7. She knows I'm dying, but we try be light about it; enjoy moment! #AskTVDr http://bit.ly/J3aYLnSecond Opinion

@simplejoysphoto Thank you Joy and Gary for sharing your stories and experiences. You are heroes! #AskTVDrJeanne Fisher

Local MDA groups help families with equipment, support! http://bit.ly/J3aYLn #AskTVDr @SecondOpinionTVSecond Opinion

Symptom management leads to max quality of life for people with ALS #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

#asktvdr.com - This man is inspirational. I can't even imagine going through this. Same thoughts about Joy. Amazing people!Irene Fink

No cure for ALS, but tech/resources contribute to better lives #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

I gotta give props to Gary for talking this long #ALS #AskTVDrJoy Parker

78% of adults needing long-term #ALS care rely on family/friends as sole support #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

#AskTVDr @secondopiniontv Speaking of advocates, Gary has even gone to D.C. for Advocacy Day, meeting with Congressman Pat MeehanALS Philadelphia

"If you keep telling people no, they'll stop asking." Great quote Gary! True sentiment. #AskTVDrSara Hunter

Gary spot on about the importance of peer-to-peer assistance and communication! #asktvdrALS Advocacy Topics

If people offer to help, say YES! If you keep saying no, they will stop offering. #AskTVDr @SecondOpinionTVSecond Opinion

From Gary: http://Patientslikeme.com helpful in finding support from patients with same conditions #asktvdr #AskTVDrMarion French

@secondopiniontv caregiving is the most needed and most expensive part of this illness. #ALS #AskTVDrJoy Parker

@simplejoysphoto Props to Gary for talking so long under hot lights AND to Joy helping out with Twitter Event!! #AskTVDrSecond Opinion

Critical to have Health Care Proxy; Advance Directives for Care! #AskTVDr @SecondOpinionTVSecond Opinion

#AskTVDr @secondopiniontv Great pt on multidisciplinary clinics. We're fortunate to have such great care at our clinics http://www.alsphiladelphia.org/page.aspx?pid=925ALS Philadelphia

Dr Quill says time limited trials are a good way 2 make decision about ventilator. #AskTVDr @SecondOpinionTVSecond Opinion

Positive attitude, willingness to take risks has positive impact on quality of life #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

RT @secondopiniontv: 78% of adults needing long-term #ALS care rely on family/friends as sole support #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnWalk to Defeat ALS

Joy says not looking forward 2 time when can't do anything. #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

RT @secondopiniontv: No cure for ALS, but tech/resources contribute to better lives #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnKels ♥ Simply Me

@ifink1976 most of us are weepy... amazing COURAGE--Joy & Gary!!! #AskTVDrSecond Opinion

Great point by Mary Beth that the vent doesn't stop the disease. Patients need ppl like her for insights and help. #asktvdrALS Advocacy Topics

#AskTVDr Joy is a profile in courage XOXOX http://pic.twitter.com/21RCTuDiJeanne Fisher

FDA TRIAL w/ stem cells now going on @Emory University, GA #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Panel discusses new trial with STEM cells. What other research is going on? #AskTVDrMarion French

Go to http://clinicaltrials.gov for info on all ALS trials in US #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

Important to monitor, treat symptoms as they change #ALS #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

#AskTVDr @secondopiniontv Gary's positive attitude is a joy for all of us!ALS Philadelphia

Gary says he can't yell as loud as he used to @lacrosse games #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

RT @secondopiniontv: Tough to diagnosis ALS as symptoms mimic other medical conditions #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnALSofGNY

@SecondOpinionTV Hearing Gary's story is very inspiring. Thanks for sharing with us. #AskTVDrSara Hunter

Gary's bucket list -- deep sea fishing, sky diving-- DONE IT !! #AskTVDr @SecondOpinionTV http://bit.ly/J3aYLnSecond Opinion

#AskTVDr Gary's bucket list includes skydiving - DONE! http://pic.twitter.com/JpJov5v7Jeanne Fisher

Joy's bucket list--trying to figure it out! going on trips more difficult SPENDING TIME with daughter!! #AskTVDr http://bit.ly/J3aYLnSecond Opinion

@secondopiniontv @simplejoy What? No skydiving? :-) #AskTVDrJeanne Fisher

@secondopiniontv #AskTVDr thank you for shining a bright light on #ALSALS Philadelphia

@alsphiladelphia you r welcome... thanks for joining in !!! #AskTVDrSecond Opinion

Thanks 2 all participants, panelists, Gary, Joy, Deb Guntrum, NP @URMCDiscoveries for GREAT ALS talk #AskTVDr http://bit.ly/J3aYLnSecond Opinion

MT @secondopiniontv: Join us 2morrow for Mystery Illness Case at 3 PM ET; Sat 10 AM --new cancer treatment #AskTVDr http://bit.ly/J3aYLnWXXI News

Strangely fascinating to watch everyone stare at each other for cut-aways... Anyone want to film me watching my streaming vid feed? #asktvdrAndrew Wheeland

More Live @SecondOpinionTV Chats on Mystery Illness Case 6/15 3PM ET & 6/16 10AM ET New Cancer Treatment #AskTVDr http://secondopinion-tv.org/twitterWXXI Ed Outreach Ctr