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National Alliance for Caregiving
National Alliance for Caregiving: http://www.caregiving.org/
National Alliance for Caregiving Family Care Resource Connection http://www.asaging.org/nac/index.cfm
301-718-8444
The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
Family Caregiver Alliance:
www.caregiver.org
Family Caregiving 101: http://www.familycaregiving101.org/
800-445-8106
A public voice for caregivers, FCA provides information, education, services, research and advocacy to support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions.
National Family Caregivers Association:
http://www.nfcacares.org/
National Family Caregivers Assn. Community: http://www.nfcacares.org/join_nfca/ind_mem.cfm
800-896-3650
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
In honor of National Family Caregivers Month and National Family Caregivers Association's 15th Anniversary, NFCA is hosted a FREE Family Caregiver Teleclass to teach family caregivers how to improve their communication with healthcare professionals and become better healthcare advocates for themselves and their loved ones.
View the teleclass materials here: http://www.nfcacares.org/national_family_caregiver_month/teleclass.cfm
AARP
www.aarp.org
888-OUR-AARP
AARP is a nonprofit membership organization of persons 50 and older dedicated to addressing their needs and interests.
ARCH National Respite Network
www.archrespite.org
919-490-5577
The ARCH National Respite Network includes the National Respite Locator Service, a service to help caregivers and professionals locate respite services in their community,and the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels.
Administration on Aging (US Department of Health & Human Services)
www.aoa.gov
202-619-0724
The AoA provides home and community-based services to millions of older persons, including home-delivered meals programs or nutrition services in congregate settings; transportation; adult day care; legal assistance and health promotion programs
Alzheimer's Association
www.alz.org
800-272-3900
The Alzheimer's Association is the leading voluntary health organization in Alzheimer care, support and research
American Association of Homes and Services for the Aging (AAHSA)
www.aahsa.org
202-783-2242
American Association of Homes and Services for the Aging (AAHSA) were committed to providing a full continuum of housing, care and services for older adults. The future of aging services means providing services people need, when they need them, in the place they call home.
American Bar Association (ABA) Commission on Law and Aging
www.abanet.org/aging
800-285-2221
The mission of the ABA Commission on Law and Aging is to strengthen and secure the legal rights, dignity, autonomy, quality of life, and quality of care of elders. It carries out this mission through research, policy development, technical assistance, advocacy, education, and training.
Assisted Living Federation of America (ALFA)
www.alfa.org
703-894-1805
The Assisted Living Federation of America (ALFA) is the largest national association exclusively dedicated to professionally operated assisted living communities for seniors.
Benefits Check-Up and Benefits Check-Up RX
www.benefitscheckup.org
202-479-1200
A service of the National Council on the Aging, Benefits Check-Up and Benefits Check-Up RX help people over the age of 55 find federal, state, and local public and private programs that may pay for some of their medical care and/or prescription costs.
CareCentral
http://www.carecentral.com
703-302-1040
CareCentral is a personalized web service that allows users to create a private, secure online community for loved ones during significant health events. It is a free tool to update friends and family, organize and schedule offers to help, and encourage messages of hope, providing support when it is most needed.
CarePages
http://www.carepages.com
888-852-5521
CarePages are free, private web pages that make it easy to reach out and receive messages of support and to stay connected to family, friends, co-workers and others who care about you and your loved one. The service is available to anyone caring for a loved one, but may be particularly helpful to those who have recently found themselves in a care giving role.
Centers for Medicare and Medicaid Services
www.cms.hhs.gov
877-267-2323
Centers for Medicare and Medicaid Services is the federal agency responsible for administering the Medicare, Medicaid, SCHIP (State Children's Health Insurance), HIPAA (Health Insurance Portability and Accountability Act), CLIA (Clinical Laboratory Improvement Amendments), and several other health-related programs.
Children of Aging Parents
www.caps4caregivers.org
800-227-7294
Children of Aging Parents is a nonprofit, charitable organization that provides reliable information, referrals and support.
Eldercare Locator
http://www.eldercare.gov
800-677-1116
Eldercare Locator provides referrals to Area Agencies on Aging via zip code locations. Family caregivers can also find information about many eldercare issues and services available in local communities.
HealthInsurance.com
800-942-9019
www.healthinsurance.com
This fairly new Web site provides consumers and small businesses with quotes for health insurance, and may help those who have lost their health insurance find an affordable alternative.
Hill-Burton Free and Reduced Cost Health Care Program
www.hrsa.gov/hillburton/default.htm
800-638-0742
A resource to help those who are unable to pay for care from a hospital, nursing home or other health facility find one of the roughly 200 such facilities obligated under a 1946 law to provide free or reduced-cost care to people residing in their area.
Hospice Foundation of America
www.hospicefoundation.org
800-854-3402
Helps those who cope personally or professionally with terminal illness, death and the process of grief and bereavement.
Lotsa Helping Hands
http://www.nfca.lotsahelpinghands.com
800-896-3650
Lotsa Helping Hands is a free-of-charge online service for creating private caregiving coordination communities where family and friends can stay informed and more easily provide assistance and support to caregivers. The service features many communication and social networking tools, including the ability to easily store and retrieve vital medical, financial and contact information, convey medical updates, and post photos. In addition, the easy-to-use calendar is specifically designed for organizing helpers, where everyone can pitch in with meal deliveries, rides, visits, and other tasks.
Medicare Rights Center
www.medicarerights.org
888-HMO-9050
The Center provides hotlines for direct services, education/training, policy briefs, and a list of discount drug programs. The Web site also has a list of phone numbers for each state's "State Health Insurance Assistance Program and information on the new Medicare law Prescription Drug Cards."
Medicine Program
www.themedicineprogram.com
573-996-7300
This program is for persons who do not have coverage either through insurance or government subsidies for outpatient prescription drugs, and who cannot afford to purchase medications at retail prices.
National Adult Day Services Association, Inc.
www.nadsa.org
NFCA Senior Housing Locator
http://www.snapforseniors.com
206-575-0728
NFCA Senior Housing Locator powered by SNAPforSeniors™ is a current, comprehensive and objective resource of all licensed senior housing in the U.S., including assisted living, residential care, nursing care and rehabilitation communities as well as Continuing Care Retirement Communities (CCRC) and a growing number of independent living retirement communities.
National Adult Day Services Association, Inc.
www.nadsa.org
800-558-5301
Professional trade association serving adult day center providers, state associations of providers, corporations, educators, students, retired workers and others associated with adult day programs.
National Association of Professional Geriatric Care Managers
www.caremanager.org
520-881-8008
Professional association of professional geriatric care managers trained in any number of fields such as nursing, gerontology, social work, or psychology, with a specialized focus on issues related to aging and elder care.
The National Council on the Aging (Headquarters)
www.ncoa.org
202-479-1200
National Council on Aging (NCOA) is a nonprofit organization with a national network of more than 14,000 organizations and leaders. Members include senior centers, area agencies on aging, adult day service centers, faith-based service organizations, senior housing facilities, employment services, consumer groups, and leaders from academia, business, and labor.
National Hospice & Palliative Care Organization (NHPCO)
www.nhpco.org
800-658-8898
NHPCO is the world's largest and most innovative national membership organization devoted exclusively to promoting access to hospice and palliative care and to maintaining quality care for persons facing the end of life and their families.
National Institute on Aging Information Center
www.nia.nih.gov
800-222-2225
NIA provides leadership in aging research, training, health information dissemination, and other programs relevant to aging and older people. NIA is also the primary Federal agency on Alzheimer's disease research.
National Respite Locator Service
www.respitelocator.org
919-490-5577
National Respite Locator Service helps parents, caregivers, and professionals find respite services in their state and local area to match their specific needs.
Patient Advocate Foundation
www.patientadvocate.org
800-532-5274
The Patient Advocate Foundation serves as a liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relating to a patient's condition.
Partnership for Prescription Assistance
www.helpingpatients.org
888-477-2669
This is the site of the Pharmaceutical Manufacturers Association and has all the information related to the companies' discount and free programs.
RxCompare
http://www.maprx.info
800-MEDICARE
RxCompare™ is a free tool developed by Medicare Access for Patients-Rx (MAPRx) to help users determine if they need to enroll in a Medicare drug plan and, if they do, to systematically compare the drug plans where they live and select the best option for their prescription needs. RxCompareTM works in tandem with Medicare's on-line "Prescription Drug Plan Finder" and with information available from plans or 1-800-MEDICARE.
Social Security Administration
www.ssa.gov
800-772-1213
The Social Security Administration's mission is to advance the economic security of the nation's people through compassionate and vigilant leadership in shaping and managing America's Social Security programs.
"The Surgeon General's Rx for Caregivers," a downloadable PDF http://www.strengthforcaring.com/util/press/info/Prescription-for-Caregivers.pdf
Together Rx Access
http://www.togetherrxaccess.com
800-444-4106
A FREE prescription-savings card for eligible residents of the United States and Puerto Rico who have no prescription drug coverage. Plus information Medicare Part D.
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